Marfan Syndrome

Genetics Home Reference
(National Library of Medicine)
This Web site has "consumer information about genetic conditions and the genes responsible for those conditions." Help Me Understand Genetics explains the basics of genetics, how genes work, and how mutations or changes cause disorders. You can search by a specific condition or gene or browse the complete list. There are summaries for each genetic condition and gene included. This site is under development; the coverage and resources will continue to grow. Excellent illustrations, a glossary, and links to additional Web sites add to the usefulness of this site.
https://ghr.nlm.nih.gov/
Marfan Syndrome
(MEDLINEplus)
Links to sites which have been reviewed by librarians at the National Library of Medicine. Includes Latest News, Overviews, Coping, Specific Conditions/Aspects, Genetics, and Organizations.
https://medlineplus.gov/marfansyndrome.html
Marfan Syndrome
(Mayo Clinic)
Provides information about Marfan Syndrome including symptoms, causes and treatment options. Also has information on alternative medicine options and tips on how to cope with the disease.
https://www.mayoclinic.org/diseases-conditions/marfan-syndrome/symptoms-cau
ses/syc-20350782
National Marfan Foundation
This organization provides information about Marfan Syndrome, including causes, how to live with the disorder and ways to get involved with the organization. There is also a section for healthcare and scientific professionals and an online community for patients.
https://www.marfan.org/

Last Modified: Thursday November 22, 2018 7:34 PM