Rare Diseases

Genetic and Rare Disease Information Center
(National Human Genome Research Institute)
This government agent answers questions from the public, health care professionals and researches about genetic and rare diseases. Has information about specific disorders and fact sheets. Also in Spanish.
National Organization for Rare Disorders
Professional and Support Groups
Office of Rare Diseases Research
(National Institutes of Health)
This government agency has information about rare diseases, clinical trials and links where you can find publications about rare diseases.
Rare Diseases
Links to sites which have been reviewed by librarians at the National Library of Medicine.

Last Modified: Wednesday April 12, 2017 3:22 PM