Amyotrophic Lateral Sclerosis

Amyotrophic Lateral Sclerosis
Links to sites which have been reviewed by librarians at the National Library of Medicine. Topics include News, General/Overviews, Clinical Trials, Coping, Diagnosis/Symptoms, Disease Management, Research, Specific Conditions/Aspects, Treatments, Genetics, Directories, Law and Policy, Organizations, Statistics, Children, and more. Read facts about ALS, a patient's Bill of rights for people with ALS, advice for caregivers, frequently asked questions about ALS, genetics and ALS, and much more. Select espanol from the menu bar for Spanish links.
The ALS Society of Canada
This national voluntary group offers information about ALS in an easy-to-understand format. Of special interest is a manual called Living with ALS, written by an ALS patient and his family.
A Reason for Hope
(Amyotrophic Lateral Sclerosis Association)
ALSA is a national non-profit voluntary health organization dedicated solely to the fight against ALS. In addition to information about the disease, the web site offers stories from ALS patients and families.
Genetics Home Reference
(National Library of Medicine)
This Web site has "consumer information about genetic conditions and the genes responsible for those conditions." Help Me Understand Genetics explains the basics of genetics, how genes work, and how mutations or changes cause disorders. You can search by a specific condition or gene or browse the complete list. There are summaries for each genetic condition and gene included. This site is under development; the coverage and resources will continue to grow. Excellent illustrations, a glossary, and links to additional Web sites add to the usefulness of this site.

Last Modified: Monday February 06, 2017 12:32 PM